Category Archives: carer support

A bump in the road – another step taken

Mikayla has been quite unwell recently and may take a bit of time to recover as she doesn’t bounce back as easily as her peers.  Her illness has really knocked her for a 6, and she has been unable to assist with her transfers much at all.  Not knowing how long this would last or how much worse it might get,  I was just getting on with things (as us mums do)………until I  unfortunately hurt my back in the process 😦   Don’t worry,  its nothing permanent or serious enough to render me incapable of getting on with most things with some adjustments to my posture and methodology, and hopefully some hot packs and rest will sort it out soon enough. However, it does, unfortunately, greatly affect my ability to lift and bend in attending to Mikayla’s needs at the moment, and as a result, has forced me to face up to the significant impact that an injury which affects my ability to assist Mikayla has.   Although I have been conscious of this for a long time, our current situation, has forced me to think even more carefully about how I do things and has suddenly brought the issue up higher on the agenda and meant confronting the reality of my baby’s size (length) and weight.

The fact is, my 1lb4oz baby, my little girl, is growing at a rate of knots and is now a big girl 😉 getting closer to adult size every day.

    6   rocks   riverwalk

However much I want to avoid thinking about it, I simply must be more mindful that the risk of injury has increased – particularly at times like this when she is not able to help as much or as often.

In working towards helping Mikayla gain physical skills and capabilities that contriubute to her overall level of physical independence, we encourage and assist her to do as much as possible of a given task independently (time, resources, and priorities permitting).  The level of assistance she usually needs varies according to the task at hand combined with a number of other factors, and can fluctuate.   Full assistance can be required at times but lifting is generally reserved for when she is very tired or ill,  where it is necessary in order to give her a fun experience, or out of sheer necessity in an “inaccessible” situation.  It is a hard thing to face that we might not be able to do this forever – and  Im not even sure that I am ready to process that at this point…preferring to keep my focus on what we can do, on helping her reach her best level of physical independence, to minimize the difficulties that may present themselves along the way.   Right now though, it is about dealling with now, and the lessons learned from the current turn of events 😉

Although I can still manage to lift her at times, I need to be more vigelent in circumstances like this when her capacity is further reduced, when she is very fatigued, feeling pain and discomfort, or when her body is reacting a bit more unpredictably with tone, spasticity, or total floppiness as a result of her Cerebral Palsy.

So this week has been yet another learning curve in our journey together.

A combination of factors put me in the position of not being able to “just pick Mikayla up and manoeuvre her around” like I once could without thinking too much about it,  and this has seen us succumb to the need to take another step in our journey and introduce another piece of equipment into our home.   I can’t deny that it has been confronting to face the reality that a hoist has been required and may well be a necessity at other times, but having said that, I cant help but feel lucky that the need for one of these currently remains “occasional”  –  rather than becoming a daily necessity  … and we hope that everything we have done, and continue to do helps to keep it that way for as long as possible 😉

hoist mik