It has been a while between posts. Lets just say there are just not enough hours in a day…..or to be philosophical, perhaps there are enough, and what really needs to be done is done. I have made several starts on potential blogs topics, all still sitting in my “drafts” arena as I either didn’t get time to follow through or just simply didn’t feel I could adequately express that which I wanted to.
In any case at THIS point in time, the universe has forced the hand of fundraising into the limelight (something else that I haven’t been able to turn much attention too pretty much since my last blog) and so here I am commencing our fundraising efforts for the coming 12 months.
I will leave the mixed feelings I have about fundraising for a topic on its own, and today concentrate on talking about what we are actually striving for. This year it is providing Mikayla with a Sit- to-Stand Wheelchair. This is a piece of equipment which is a manual wheelchair and standing frame all in one and it will have a lot of advantages for Mikayla moving forward.
Having outgrown both her manual wheelchair and her standing frame, it is timely to look at this option for Mikayla now. Having the two in one means she can have both with her wherever she is AND she will not only be able to use it to move around but will also be able to stand up while in it, and do that independently!
I could stretch my legs by myself – this would make a BIG difference especially at school.
I could stand up anytime and anywhere I want, and then sit myself down when my legs got too tired or sore.
- I could be at eye level with my peers and join in when others stand.
- I could easily do little bits of standing throughout my day without needing someone to help me.
It will reduce pressure on my spine.
If I can get it by the time I have my surgery, it will also really help with my rehabilitation because I will be able to incorporate and gradually extend the time I spend standing up. I will be able to do small amounts of standing more often.
Standing up and extending my legs will always be very important for me to do with my kind of cerebral palsy. How great it would be to have the freedom and independence to do this myself throughout my day. “ (Mikayla)
THE PAST YEAR HAS BEEN A TOUGH.
All geared up for her major orthopaedic surgery to occur last year, Mikayla had 2 attempts that had to be aborted due to complications. Since then, she has been undergoing a lot of testing. While she waits to try again, she has continued to work hard, doing lots of low impact therapy and positioning, to keep her muscles in the best shape she can, for when the surgery can finally happen.
As you may remember from previous posts, the surgery Mikayla is waiting for will lengthen the muscles and realign the bones in both of her legs to counteract the damaging impacts that cerebral palsy has placed on her growing body. She is hoping to regain abilities that she has worked hard to acquire. Some of her goals include:
- “ To keep increasing the things I can do independently as I grow up.
- To get back on my feet and be able to stand up straighter and for longer – even if I do have to hold on to something.
- To be able to get into and out of my wheelchair by myself or with the help of one person, rather than needing to rely on a hoist.
- To be able to get back on a horse as soon as possible because I love riding so much and it is also an important and enjoyable physical therapy for me.
- To get back on my modified bike to be able to enjoy some exercise and the out-of-doors with my family. “ (Mikayla)
Therapy, positioning, and equipment will be ongoing elements in Mikayla’s life, and our family will continue to face challenges in helping Mikayla to reach her highest level of independence into adulthood, while also giving her all the opportunities we can to enjoy her childhood.
There is no Government funding available for her Sit-to-Stand Wheelchair but we are passionate about the difference it will make.
You can help us raise funds towards the purchase of a Sit-to-Stand Wheelchair for Mikayla by DONATING ONLINE using this link www.developingfoundation.org.au/family/mikayla and clicking on ‘Make a Donation’ above Mikayla’s photo. The Developing Foundation Inc is a registered charity and as such, donations of AU$2 and over are tax deductible for Australian taxation purposes.
We are grateful for the opportunity that The Developing Foundation gives our family to fundraise towards providing Mikayla with specialised therapy and equipment and for the support that she receives. .