Just to keep it balanced, I thought I would share todays events:
Mikayla was very tired today and didn’t wake up until late this morning (when she doesn’t wake on her own I know she needs the rest, so where possible I let her sleep as long as she needs. These days I find this happens less than it used to!).
Despite the fact that I was organised and ready, this meant there wasn’t time to do the warm up routine of stretching and dissociation exercises, however, because I am trying to work out a new routine, I decided that school would have to wait this morning so that we could do at least some of them.
There was no walking to class today, and this afternoon, although Mikayla was keen to get into her KidWalk for a little bit, taking steps didn’t come together as well as yesterday. Now, this could have been for any number of reasons: possibly because she was tired; it was a wet/cold day; the coordination of movements just didn’t kick in today; she mightn’t have moved round as much during the day at school because it was wet; she may have moved around more or differently (eg crawling in the classroom), she mightn’t be 100%, there could be so many factors but that is just a few examples. So instead of walking, she did do some “static standing” at the computer (we have made a height adjustable computer desk with a cut out for her to use) to do part of her homework, then she transferred into her supportive seating to finish the rest.
So every day is different. Some days you just cant fit stuff in despite your best intentions. Sometimes despite your best plans or efforts, things just don’t come together for one reason or another even if you can “fit it in”. And in Mikayla’s case at least, her level of ability can be quite variable, and can easily be affected by a variety of factors that probably wouldn’t impact on others much at all. For Mikayla, with her CP, the affects of fatigue, tiredness, illness, are far more pronounced and can significantly impact on how well she can do what we might think of as even the most simple of daily living tasks (remembering quite often these tasks are in fact NOT “simple” to her anyway!).
So the important message here is to do what you can when you can and not to be too discouraged on days when it doesn’t work out, because there is bound to be plenty of those 🙂